Friday, December 31, 2010

Different but not Less...

Today, Sunday from Adventures in Extreme Parenthood is hosting a blog hop.  The subject is "Different but not Less," sharing tips on managing holiday stress while parenting a child with special needs.


This year, Scott and I discussed ahead of time how we would like to try keeping holiday gatherings / expectations to a minimum.    With that said, I do realize that it is easier said than done.

Both of our children were adopted as toddlers and spent their first two years in orphanages.   Holidays, changes in routine, and time spent with lots of people have always been known to trigger emotional lability in both of our kiddos.    There's something about these situations which sets off the kids' "unsafe" button (as in feeling unsafe), and we usually end up dealing with a great deal of fallout after the event(s).   Hence, it was not too difficult to say....Hey, this year let's try to minimize the holiday expectations! 

It is still hard to walk the fine line of making the holiday special for my 5 year old daughter, who sorta deserves those experiences that kids talk about when they return to school (it was bad enough that we blew through St. Nick's Day without gifts, and Jade's school friends all bounded back to school sharing their St. Nick treats!  Yeah...I was totally oblivious to the St. Nick thing.)   Telling her "You see, mommy and daddy are overwhelmed with all of your brother's issues" doesn't always fly!    Jade IS her brother's biggest fan, and has been awesome with understanding and accommodating his needs....such as playing quietly when the ABA therapists are here, and trying to ignore him when he constantly mimics (echos) her.   We do try to provide her with experiences that venture out of the "different kind of family" category from time to time, while helping her to understand that we still DO have to do some things differently.

And so...we ventured out on Christmas Eve day with some wonderfully accepting friends from our adoption group to have a superb Thai lunch and spend the afternoon at an indoor botanical garden.   Jade enjoyed playing with the girls and Kai did his best to hang in there.....until about mid afternoon when he hit his "stuck point."  (eg. he became a stimmy mess).

We had plans to go to church, but those quickly became derailed by the more pressing need to decrease Kai's over-stimulation.   I did not care to inflict Kai's overly stimmy behaviors on unsuspecting prayerful folk on Christmas eve....even though it would be nice if people understood such things.    Luckily my catholic guilt did not get the best of me, and we made the decision to just return home early.   

The following couple of days went well.   We DID explain to folks what things might look like (re. Kai's behaviors), and were relieved that things did not get out of hand.  Luckily, we have subscribed to the attitude with family where, if something bothers you, either DEAL with it, or ASK about it.   This is working out well...[most] folks are dealing and asking.

In sum, what has worked this year is FLEXIBILITY.....the ability to detach from expectations and re-envision them without judgement.    Not a bad perspective to have the whole year through!

5 comments:

Sunday said...

I love that your family and friends are open and inviting to Kai's stims and behaviors and feel free to ask questions if there is something they don't understand...that is so important!

As for church..I totally understand how you feel. Our church has a special needs ministry on Sunday mornings for services but not for special events like Christmas. There is simply no way I could take my boys to a church service on that day.

Thanks for joining in on the "Different but not less" Holiday blog Hop!

spectrummymummy said...

Flexibility, yes, we could use that all year round! I Lso love the attitude of deal with it or ask about it, way more helpful than judgmental silence. Happy New Year to your lovely family.

@jencull (jen) said...

I need to take a leaf out of your book. I am doing the 'can't be all things to all people' but haven't gotten over the guilt yet. I love the 'deal or ask' and will use that line myself :D Happy New Year to you all. Jen

Lynn said...

There is so much pressure at the holidays and this was actually the first Christmas that I didn't succumb to it. Like the story about Jade's schoolmates...the pressure comes from the 3-ring circus that other parents throw their kids. What snapped me out of it was remembering my own childhood...we didn't do squat and I never felt deprived!

Chris P-M said...

@ Sunday, for what its worth, not ALL family is open to asking. That's an unfortunate, tough reality.

@ Specrummy mummy, it has taken a while to be comfortable with the necessity to be flexible. Imparting that on friends and family can still be a challenge!

@ Jen, whoa...I'm nowhere near being over the guilt thing. I consider myself a recovering guiltaholic. Too bad there aren't meetings for us! ;)

@ Lynn, I've SO railed about the consumerism thing, and all of the "shoulds" for our children. Bugs the heck outta me that those expectations exist. We grew up pretty simply too....it gave us character!

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